Brooke Eby Obituary, Potomac, Maryland, Cause of Death: ALS Advocate and TikTok Creator Dies at 37

October 2, 2026 Ad

Brooke Eby, the ALS advocate and social media creator known online as “Limpbroozkit,” has died at the age of 37 after publicly documenting more than four years of life with amyotrophic lateral sclerosis. The ALS Network announced her death on October 1, 2026, prompting an outpouring of tributes from the ALS community, followers and colleagues.

Eby became widely known for combining honesty, education and humor in her videos about living with ALS. Her approach gave hundreds of thousands of people an unusually personal look at the realities of the progressive neurological disease.

Brooke Eby Cause of Death

Brooke Eby was diagnosed with amyotrophic lateral sclerosis (ALS) in March 2022 at the age of 33.

Public reporting describes her death as following her years living with ALS. No separate medical cause of death has been publicly established in the sources reviewed, so further speculation about a specific immediate cause would be inappropriate.

Over the years following her diagnosis, Eby documented the progression of the disease, including increasing challenges involving mobility, breathing, speech and swallowing. Even as those challenges intensified, she continued communicating with her audience and advocating for people affected by ALS.

Brooke Eby’s ALS Advocacy

Eby transformed her personal experience into a broader advocacy effort.

Through her social media accounts, she shared candid updates about medical treatment, accessibility, relationships, work and everyday life while explaining how ALS affected her physically and emotionally.

Her online identity, Limpbroozkit, became closely associated with her humorous and straightforward approach to discussing the disease. Rather than presenting ALS only through statistics and medical terminology, Eby allowed viewers to see the person behind the diagnosis.

Her work helped introduce many people to the realities of ALS while encouraging greater understanding of patients and caregivers.

Founder of ALStogether

One of Eby’s most significant contributions was ALStogether, an online community she founded to connect people living with ALS and their caregivers.

The community provided a place where members could share resources, ask questions, exchange experiences and connect with others facing similar challenges.

In 2026, ALStogether became integrated with the ALS Network, expanding the organization’s ability to support people affected by ALS. The ALS Network had previously reported that the community had more than 1,700 members.

Advocate of the Year Recognition

Eby’s advocacy was formally recognized in 2026 when the ALS Network named her the recipient of its 2026 Dean and Kathleen Rasmussen Advocate of the Year Award.

The award recognized her work raising awareness, building community infrastructure, supporting people living with ALS and helping change public understanding of the disease.

The recognition came only months before her death and reflected the growing influence of her advocacy beyond social media.

Her Final Years of Sharing

As ALS progressed, Eby continued documenting changes in her condition.

Her later updates described increasing difficulties with breathing, speech and swallowing. In September 2026, she discussed the rapid deterioration of her ability to communicate verbally.

Despite these challenges, she continued using her platform to help others understand ALS and to provide a candid record of what life with the disease could look like.

Tributes After Brooke Eby’s Death

Following news of her death, the ALS Network remembered Eby as an advocate, storyteller and community builder.

Sheri Strahl, president and CEO of the ALS Network, said Eby had changed how people viewed ALS while also helping people living with the disease find connection and support.

Salesforce CEO Marc Benioff also publicly mourned Eby. She had worked at Salesforce for approximately a decade, continuing her professional career while managing the challenges associated with ALS.

Brooke Eby’s Legacy

Brooke Eby leaves behind a legacy that extends well beyond her social-media following.

Through her videos, writing, public advocacy and ALStogether community, she helped bring greater visibility to the experiences of people living with ALS.

Her decision to discuss difficult subjects with openness and humor allowed followers to understand the disease while also seeing the everyday life of the person experiencing it.

The community she created through ALStogether is expected to continue as part of the ALS Network, preserving an important part of the work she began.